AimeeS's picture

Still undiagnosed

Hi there,
I am new to the board. My name is Aimee and wondered if some of you have some advice.
I have a two year old daughter who has been diagnosed with global development delays. She has just started to walk, which is fabulous, but we are still waiting for portage referral and speech tharepy. She has still not been diagnosed as yet.
Her main issues are really being the age of about a 10 month old, in that she cannot point, identify objects or say any words. Has anyone else experienced the same kind of things?

ladeanda's picture


Have her hearing checked

concerned mom's picture
concerned mom

Hi Aimee,

When I first joined these boards, I posted about the same topic. My now almost 6 yr old son has been receiving therapies for a developmental delay as well. The first thing you shld do is talk to your daughter's pediatrician. Get your daughter into Early Intervention as soon as you can. As the other poster mentioned, get your daughter's hearing ck'd as well as her vision ck'd. If your daughter isn't talking, request speech therapy right away b/c there may be a waiting list. I wld also take your daughter to a Developmental Pediatrician for testing. Look into your insurance to see if it covers services for developmental issues. Our insurance covered all therapies up to age 5.
Take advantage of every opportunity you have; the earlier the better. Some kids just need more time than others to catch up. Take it one step at a time. My son will be 6 in July, and he too is still not diagnosed. It's frustrating not knowing, but don't put your focus and energy into the why and the what, but instead focus on the how. Be concerned, but be hopeful. Do everything you can to help your child reach her potential. You're her best advocate. Don't just accept something if you don't agree w/ it. My son is currently in spec ed, and he'll be entering 1st Grade in the fall. W/ the extra assistance, he is doing well. I wish you all the best through this journey. It's a long and sometimes bumpy road, but all your efforts will pay off in the end. Good luck.
PS--You may also want to request PT and OT. The earlier you do this, the easier it is to get these therapies in school.

amber00's picture

HI! my name is Amber I have a 5 yr old who is still undiagnosed. he has some brain damage but no name or reason of how he got it, he has a mind of a 1 year old. he cant speak much, I still feed him and change him. but by looking at him you cant tell he has any problems. he looks like a normal 5 year old.. we could only get therapist to come to the home till he was 3 and I cant find any places now that can come in home and teach him. he is going to a regular school this year if he doesnt progress I am pulling him out and putting him in a special need school...