Only2boys's picture
Only2boys

Nonverbal Learning Disorder anyone?

Hi all! I'm just wondering if there is anyone out there who has a child diagnosed with a Nonverbal Learning Disorder (NLD). I know it is not real common and from what I've found few people know much or anything about it. If you have a child diagnosed with this I'd love to hear from you about your experiences with this disorder. Thanks.

Only



2xstepmom's picture
2xstepmom

Great website: www.ldonline.org

Lots of information and suggestions for you and your NVLD child.

2xstepmom's picture
2xstepmom

My now 25 y/o daughter has NVLD. At 13 she was (finally!) diagnosed with Social Anxiety Disorder. A very dedicated school psychologist put the pieces of the puzzle together a year later and made the NVLD diagnosis. The high school she attended did not have any accomodations for NVLD at the time so because of this, the Social Anxiety Disorder and peer difficulties we chose to home school. My daughter struggled through until age 20, then stopped school, returned to the local adult high school last fall and graduated with her high school diploma last month.

Because all NVLD children present differently, this can be a difficult diagnosis. My daughter did not have the extreme coordination issues that very often present at a young age. Her coordination waned as she got older. She was very, very verbal at a very young age (8 months) and was considered advanced and precocious until entering kindergarten. She was and is a very good speller and has always had an excellent vocabulary. Putting that into practice in a traditional educational environment was and is difficult.

My daughter has few friends, only one from childhood and has other social difficulties. Her first boyfriend, at 19, as able to manipulate and control her, convincing her she was "stupid" and "worthless" because of her issues. I have talked to other parents of NVLD young adults who have had similar situations. My daughter does work, and is a wonderful, sweet, loving and generous person.

Hope this helps.

Only2boys's picture
Only2boys

Yes, this is very hard to diagnose. If it wasn't for us taking our son to be evaluated for ADD and then the suggestion of seeing a child psychologist who thought he may have Asperger's or PDD-NOS, but wanted an evaluation done at a hospital that specialized in Autism, we wouldn't have gotten this diagnosis. Our psychologist didn't even know about NLD.

We were told he was too smart for his own good. He does not have the math weakness or reading comprehension issues that usually come with this disorder and learned to talk pretty much at the time he should have, except that his vocabulary did advance pretty quickly... in fact he kinda got the nickname from us as the absent minded professor. He tested very high and is in the gifted program. Because he is smart with weak social skills it makes him stand out, unfortunately.

He is also weak in spatial skills. The spatial skills are there and test pretty much average, but behind his verbal skills. And of course they use the skills they are strong in when trying to figure things out, which doesn't improve their weaker skills.

He doesn't have an odd walk, but doesn't care for sports, except solo sports like Tae Kwon Do and swimming. He does well riding his bike which is usually a weakness.

I worry because of my son not having a good friend. The dr. said he needs just one good friend and that will be fine. He has friends at church, but none really that invite him over (the ones his age are girls). We are good friends with one family who has two girls, but the kids go to different schools and they are usually so busy with other activities that we seldom have time to get the kids together.

Did your daughter clash with her siblings? I'm not real sure what happens with the soical disorder that you mention. Was she bullied by other kids?

Sorry to hear about the boyfriend treating your daughter that way. I'm sure that really hurt her self-esteem. Did it take her awhile to recuperate from that event?

Was your daughter ever thought to have ADD or diagnosed as having ADD? I was told those symptoms are just part of the NLD disorder, which I find quite interesting.

2xstepmom - Thanks for responding and I'm hoping there are others who respond that have these "special" children. By the way the pschologist also thinks my second son is NLD, but too young to diagnose accurately. I was told 6 is the earliest age, because before that it is hard to be valid.

Anyone else out there with NLD kids???

2xstepmom's picture
2xstepmom

My daughter is 6 1/2 years younger than my son, who chose to protect his sister from a very young age. They have been great friends from the start and still are at 25 and nearly 32. He is ADHD (but has never been medicated) and very understanding of his sister's disorders. My daughter is ADD/ADHD and does not like the way the meds make her feel. At this time she is on anti-anxiety meds only.

Social Anxiety Disorder is another complicated diagnosis. Many NLD kids are anxiety prone. Yes, she was bullied at times but that was not the cause. This manifested itself at around age 7 and got progressively worse.

One of the most difficult things is everyone's well-meaning and often conflicting advice, especially from family members. We have heard everything from we babied her too much, to she just needs a good spanking, to we are too tough on her. We try to help her when we can and be supportive of her. Though, for us, the whole situation has become much more tough as she has gotten older.

She is not over her negative treatment by the ex nearly a year later. Recently she told us she is never leaving home again. We hope that in time she will get past her hurt and be able to move on.

Only2boys's picture
Only2boys

Thanks for responding 2xstepmom. I'm glad to hear that your kids get along well. I wish that was my case here. I guess I'm struggling with knowing what to do to help them. At this point we have a psychologist and dr. that know little about NLD and don't know what to do to help us. We don't live near one of the larger hospitals who would have services to help us, so we are at a loss as to what to do. I'm searching for anything to help us. Thanks and goodluck with your daughter.

Only

Only2boys's picture
Only2boys

2xstepmom,

Did you find a dr. or psychologist who specializes in NLD or Autism to work with your daughter and family? We are searching for these drs. in our area. Which state are you in?

Only

2xstepmom's picture
2xstepmom

We live in Delaware and are fortunate to live down the road from a hospital that is constantly upgrading services and attracts great doctors and psychologists. I am also fortunate to nanny for 10 1/2 years for 2 very dedicated doctors, one is the area's preeminent pediatrician, who has taken the time to learn a LOT about autism (and NLD) and has been very helpful to us personally. There is also a public school, again just down the road from our home, http://cape.de.schoolwebpages.com/education/school/school.php?sectiondet...
that is renowned nationwide as THE school for all forms of autism and LD. I have known many people who have moved to this area (and the added bonus is getting to live at the beach) just to be able to have their children attend this wonderful school. Many perople have shared that their children were languishing in the schools they had attended, misdiagnosed and misunderstood. My daughter was 15 and already in 9th grade when she was diagnosed in 1999, and after much consideration we chose to homeschool. Many of the children in our homeschool group were LD so we had a great deal of success.

I also work as a Therapeutic Mentor through the state and have worked with many autistic children. Many of my clients over the past 13 years attended this school. Also the local mental health organizations are very well versed in autism. Nearly all of the therapists I have worked with are well trained. Unfortunately, so many parents want their children to be cured, there is no cure, just teaching the parents to cope and teaching the children to do what they can to lead productive lives.

Possibly if you choose to contact this school which is open year round, they could help point you in the right direction. Your little guy is young enough for early intervention to make a profound difference to you all.

2xstepmom's picture
2xstepmom

Another great website: www.delautism.org

Hope it is helpful to you.

Only2boys's picture
Only2boys

2x,

Thanks for your suggestions and the sites. I asked to joing the del support group, but am doubting they will let me join, because of not living in Del... but I tried.

I want to look at the sites more when I get time. I would love to find a autism support group that I don't have to pay for a membership to the site... extra money I don't have right now.

Thanks again... I just keep reading and plugging away! :)

Only

Only2boys's picture
Only2boys

2xStepmom,

What books on NLD have you read? Which ones were the most helpful for you? I'm trying to read as many as I can. I've gotten some out at the library and I purchased a couple as well.

Only