TarynH's picture

Effects of child's disability on family

Hello. I am a pre-service teacher and am currently taking a class on teaching special needs children. We have recently been discussing what affects this news can have on a family. I was hoping that a parent could tell me how they felt about their situation and how this opinion has changed or not over time. Thank you very much!

concerned mom's picture
concerned mom

Hi there. I'm happy to help you out. My son (now 5) has a developmental delay. At first the news of him not being where he shld be at 2 yrs old was a bit concerning, but then again many kids are known to catch up, so we weren't too worried. After the first yr and many trips to different drs, we became more concerned and almost obsessed w/ why, how and what was going on w/ our son. We searched high and low for answers but to no avail. We kept being told to "give it time". Today, our son is still in special ed, and although we don't have an official diagnosis, we have a better handle on the what questions we've been asking ourselves for so long. It is a lot more comforting to know that our son is getting the services he needs to address the issues he's facing. We don't know what the future holds for him, and still we search for answers, but we have come to accept the situation for what it is. Our son has come a long way from when we first started this journey, and we are so proud of his continued efforts and progress. We still struggle w/ the social aspects of his disability, as it's hard to see him stand out from his peers. This coming Sept, our son will probably be entering the public school system, a decision we've struggled w/ for a long time. We want our son to build friendships and fit in just like any other child his age. He is such a sweet and kind-hearted kid, and we don't want to see him get hurt. Other than that, we treat our son like a normal 5 yr old. He loves to play outside, swim, do arts and crafts and so forth. He is a true joy and a blessing, and we are so fortunate to have him in our lives. He has taught us so much, and he has made us better people. Although we are still concerned, we've become much more hopeful. Instead of focusing so much on the negative, we put our energy into making this a more positive experience for everyone. It is worth every once of effort to see our son happy and perform to the best of his ability. I hope this gives you a better understanding on how a child w/ special needs changes a family in so many ways. I wish you all the best w/ your class, and w/ your very rewarding career in teaching. Good luck to you.

debbi971's picture

Hi,, I dont know if this will help but I have 2 sons, one which has just been diagnsosed ADD and another who we are awaiting test results for muscluar dystrophy. This has a massive impact on our family. We are constantly terrified on what will happen with the older child muscular dystrophy) yet have to deal with depression, anger and social problems on a daily basis with the younger child. I hope this helps you in your new job.