GG0429's picture
GG0429

Baby NOT gaining weight!!!! HELP

Hi... Hope somebody can help because we are very very worried.... My niece was born at 7 lbs 6 oz. Mom had gestational diabetes and delivered 2 weeks early. She was told everything was ok but they did have concerns with her breathing at first, but she was sent home as planned. She has had eating problems since birth. She has never latched properly to anything. They tried every bottle known to man and even breast feeding and it never made a difference. She has been underweight for most of her little life. She is no longer on the growth chart. She is now 11 1/2 months old and has gained NO weight in the last 2 months, she only weighs 15 pounds. she has been under a pediatrician's care since she's been 6 months old. They ran all sorts of blood, urine and sweat test and those have all come back normal. She still cannot support her own weight, she does NOT stand, she cannot sit alone for more then 5 seconds without toppling over. She has been on solids since 6 months and that has proved to be difficult for her as well. At 9 1/2 months mom was told to add butter and mayonnaise to her food to add extra fat in her diet to hopefully help her gain weight. Well apparently that has done nothing to help since she has failed to gain any weight. MOM is pretty much force feeding her to get food in her, she doesn't know what else to do. She is waiting to see a Neurologist. They are also waiting to see a geneticist. Unfortunately there are waiting list and it will be 1 month before she can see the neurologist and 3 months before she sees a Geneticist. Has anyone else ever had similar problems??? Any suggestions??? We are really worried about our little peanut...



concerned mom's picture
concerned mom

It sounds like these parents are doing all the right things. They may also want to consult a nutritionist. I never faced this problem w/ either of my children, but if I were in their shoes, I'd be exploring all options as well. Have they tried a Developmental Pediatrician or an ENT?
Cld this be something physical maybe? Or possible a sensory problem? What about when she does eat? Does your niece gag or spit up her food? Does she have any other reactions? Also, what is her disposition like during the day, and especially during feedings? Does she seem uncomfortable, irritable or like she's in pain?
If the parents can't get to these drs right away, they shld consider taking their daughter to a children's hospital for more tests. If she had breathing problems at birth, maybe there's an obstruction of some kind that's interfering w/ her eating. I don't know. I can only guess. However, I wouldn't overlook any possibilities. The parents shldn't wait either.
Keep us posted on how your niece is progressing.

GG0429's picture
GG0429

When it comes to solid foods she seems to get them down alright. She still spits up as much as my boys did back when they were 3-4 months. When it comes to her bottles, she sucks in so much air trying to get the nipple in her mouth properly that she ends up throwing up due to air bubbles. She is constantly flailing her arms and legs around to the point she is very hard to hold. Last time I babysat her, I ended up swaddling her like an infant, hands in and everything, as tight as possible so she couldn't move, that was the only way I was able to give her her bottle. She still has no teeth so it makes it difficult to give her a variety of foods right now. But all her food is homemade.
As far as her disposition, she is teething so she has been a little whinny, but overall she's a very happy baby. Both mom and dad have done everything they've been told to try as far as feeding her. They've also tried everything other people have suggested and still no changes. She is seeing a Physical Therapist and Occupational Therapist as well. Everyone keeps saying the same thing "she should be progressing but she's not" They've all done everything they apparently can do... Trust me, we are far from giving up on our peanut, it's just very frustrating and scary when the doctors and therapist give up. I believe she has an appointment to see specialists at a children's hospital as well, we are very anxious to hear what they have to say. It would be nice to have answers. Thank you for your concerns... I'll keep you posted as I get more info...

junieg's picture
junieg

You mentioned a vast array of specialists, but no Speech and Language Therapists. Do you know if she is being seen by one. SALT's deal also with eating and can help with feeding problems.

It certainly sounds like her parents and family are all doing everything they can for this wee girl anyway. Keep us posted on how things go for her please.

Only2boys's picture
Only2boys

Hi! Just want to give you support and tell you to hand in there. My oldest son was low on the charts and I was also told to put butter in his milk and also ice cream too. He did everything developmentally on time, but was small. Around 2 or 3 he started catching up and now is right up with the other kids. I remember I worried to death.

As I think back I wonder if some of his problems were sensory issues. He didn't like meat for quite some time, but eats it now.

Another thing that was suggested for my son at one point was those ensure shakes so he got the calories.

Could this little one take a sippy cup? You may have better luck with this then a bottle if she is having problems sucking. Also a straw could eventually make things easier. Could she be tongue tied?? Did they check that out?

I would wonder if she is having trouble tolerating the food and something is either wrong in the stomach or maybe she is having digestion problems. Did they do any scans on the little one? Sometimes lack of muscle control is diagnosed at CP.

I do wish you guys the best. I know I was in constant worry with my son and unfortunately the pediatrician in my case made it worse.

Hang in there.

acitez's picture
acitez

If you haven't already, tell the hospital staff your concerns about the fatigue problem. Often, family members are aware of things that the professionals are not. That is one of the reasons that people who are hospitalized recover more quickly when they have family members stay with them most of the time.

I hope you are able to spend a good part of every day with your son. I know that can be difficult to arrange, but he will do better if you can spend more time with him.

anniesophia's picture
anniesophia

so i read your post and it has been one year? how is she doing?
my one year old just got diagonsed with "failure to thrive" I didnt even know it existed until my little one. He hasnt gained any weight for 5 months and the pediatrician that we were seeing had no concern considering he was meeting his developmental milestones. As a mother, I knew fromt he time he was 4 months that he had eating problems. he will not nurse unless its during the time he sleeps .. so he nurses unconciensely (spelling questionable). He goes for his one year checkk up and I had a break down..so I saw another doctor and he diagnosed my son. told me to add butter and fat in his diet.. how would i do that when my son refuses to eat. i force him to eat and its really energy draining for me. i am very curious to see how your niece is doing because I am so worried for my son. theyve taken blood and urine samples and those came back normal.
Please let me know how she is doing today.

2xstepmom's picture
2xstepmom

It would be rare to get a reply from an original poster nearly a year later. Have you taken your child to see a developmental specialist? Is there a children's hospital such as A I DuPont in your area?

anniesophia's picture
anniesophia

i figured its been a while.. but worth the shot. thanks for your reply. they found that he has a urinary tract infection and is under treatment right now. they took a huge tube of blood from him this past week for futher testing. i dont know what else to do but wait.. he's losing weight and wil NOT eat anything. the doc gave us some high calorie formula, but he will not take anytihng other than breastmilk when he's unconcious.. while sleeping. do you know of anyone with similar problem with positive results? i need hope. thanks.

anniesophia's picture
anniesophia

hi..

i read your reply to the original post and my son s going through what yours went through. how is your son doing? we have an appointment with a GI specialist in a few weeks if all the tests that they are running turns out clear.. then they will take the next step. he did have a urinary tract infection and currently treating.. took 15 ml of blood from the little scrawny guy to do some tests earlier. my little one wont eat.. i have to trick him into eating my entertaining him somehow. its sooo exhausting. he'll be one year in two weeks and hasnt gained any weight since 6 months old. i hope you had some positive results. i dont want to give up.. but im wearing out, physically and emotionally. i cry at least once a day trying to get him to eat or drink anything.

acitez's picture
acitez

I hope you are getting some help from your family or friends.

I know people say they would do anything for the children, but few people are called upon for real sacrifice.

Try to get some rest, and some fresh air. You've got a lot on your plate.